Charity reveals recipients of £300k specialist nursing grant

Roald Dahl’s Marvellous Children’s Charity has awarded £100,000 each to East London NHS Foundation Trust, Leeds Teaching Hospitals NHS Trust, and Lewisham and Greenwich NHS Trust.

“Transition care has reached a critical point in the NHS”

Michelle Johnson

The trusts were selected out of 17 applicants and the money will allow them each to recruit their own Roald Dahl specialist transition nurse.

The announcement is part of the charity’s ongoing mission to tackle the “transition gap” for unwell youngsters in the UK who have a bad experience during their transfer from paediatric to adult teams. 

The new recruits will add to the four Roald Dahl specialist transition nurses already employed and the charity has plans to fund further posts in 2020.

For example, in East London, the Roald Dahl specialist transition nurse will support young people living with complex mental health needs.

Meanwhile, the post at Leeds is being introduced for patients living with neuromuscular conditions, and the nurse at Lewisham and Greenwich will be there for those living with haematological conditions and neuro-disabilities. All three trusts are recruiting for their new posts in the coming months.

Under the scheme, the charity covers the cost of the post for the first two years on the condition that the NHS trust commits to continuing funding it for at least another three years after. 

The new posts have been confirmed today as part of the Roald Dahl’s Marvellous Children’s Charity’s new Everyone’s Business campaign, which has been launched to mark International Youth Day on 12 August.

The campaign highlights how transition from child to adult services for young people with serious and complex health conditions should be “everyone’s business”, recognising the affect this issue has on not only children and their families, but healthcare professionals and the wider health service.

“Roald Dahl specialist transition nurses can dramatically improve quality of care”

Michelle Johnson

Michelle Johnson, chief nurse Whittington Health NHS Trust and trustee of Roald Dahl’s Marvellous Children’s Charity, said: “Transition care has reached a critical point in the NHS with many children and young people reporting a poor experience and at risk of falling through a transition gap in care.

“It’s vital that [the charity] innovate in this area as part of our commitment to help every seriously ill child lead a marvellous life,” she said.

“Roald Dahl specialist transition nurses can dramatically improve the quality of care that young people receive as they prepare and experience transition, and we are delighted to be able to fund these three new posts as well as committing to further posts in 2020.”

The transition nurses join the charity’s wider network of more than 70 Roald Dahl specialist nurses who care for seriously ill children across the UK with long-term, incurable conditions.

NHS trusts interested in applying for funding for a specialist transition nurse post in the future should email [email protected] to express an interest.