New nursing charity resource for families affected by dementia

The new information leaflet – called Changes in care: finding help and assistance at home – highlights the options which are available to families to get additional support around the home.

“Dementia is an emotionally and practically challenging condition”

Hilda Hayo

Dementia UK noted this could include anything from getting help for vacuuming and gardening, having carers visit in the morning to help the person with dementia get washed or dressed or even 24-hour live-in care.

Other instances where families may feel they need extra support around the home include managing continence issues, distressed behaviour including pacing, shouting or anger, and preparing and eating meals.

The charity highlighted that some people may be eligible for funding to get support at home.

Families should contact their local council in this instance and a needs and carer’s assessment would then be carried out, it said.

It added that in the case of self-funders or people who would prefer to choose care themselves, families can visit the United Kingdom Homecare Association website for a list of care agencies.

Families may also want to establish whether staff at a care agency have had dementia training, said the charity, as well as a range of community services available to help families with dementia.

These services can include local memory cafes, local day centres and telecare services, such as local councils offering monitoring and alarm systems.

Hilda Hayo

Hilda Hayo

Hilda Hayo

Dr Hilda Hayo, chief Admiral nurse and chief executive at Dementia UK, said: “Dementia is an emotionally and practically challenging condition, which can become even more so when families decide that they need to have extra help around the home.

“There are in fact a range of options open to families to allow them to live more comfortably but not every option will be suitable for all families,” she said. “It is, therefore, important to discuss what would be the most appropriate support.”

Dr Hayo added: “Some families may be reluctant to accept additional support around the home as they wish to preserve their independence.

“However, opening up to this help can provide a number of benefits to families including increased free time for family carers and ultimately keeping the person with dementia at home for longer.